Posted by: graceunbound | April 27, 2008

And so it began

This is the entry that isn’t easy to write. It’s a story I could hide and no one would ever know. But it’s a story that I have to tell; a story that I want to tell because if someone had told it to me six years ago it would have made a world of difference. Postpartum depression is talked about; it’s understood to a degree. But there is another type of postpartum mood disorder; a type that I never knew existed until several months ago. This is a story, my story, of postpartum OCD. (I know I get the occasional male reader who stumbles across my blog. I encourage you not to just check out at this point thinking ‘oh, it’s a woman post’. If you have a wife, sister, daughter, or close female friend you need to know this too. Doctors don’t always ask the right questions of new mothers, sometimes it’s up to you.)

Six years. Where has the time gone? It seems like such a short time ago that I held Gates in my arms for the first time and yet it is so hard to remember how small he was, how helpless. And soon he’ll be turning six and I am remembering. Remembering, and finally healing.

There is a common saying, turned into a commercial for baby products, which tells us “Having a baby changes everything.” And it does. The sleepless nights, endless loads of tiny laundry, the inability to just head out the door with ease whenever you want, the worry over every cough, the endless debate over every decision because now it affects a third person in your life, the first real smile that melts your heart, the celebration of every milestone, big or small, the pride that fills your heart that this is YOUR child. Having a baby changes everything.

I was ready for change, ready for the responsibility, ready to be a mother to another little being. I held him in my arms and I loved him. The first week wasn’t easy. There was recovery from a traumatic birth experience, the struggle to nurse him, the fear that he might have to go back to the hospital, the suspicion that I might be sliding into postpartum depression.

But I could handle it. I was tough. Having a baby changes everything, I just needed to adjust.

I don’t remember when it first happened, but I remember where I was. I was sitting on our couch by the window. Blue couch, reclining ends, middle that folded down into a table so that I could sit there for hours just holding Gates with everything I needed right at hand. I was holding him, looking at him, marveling at his perfection, loving him. And then the thought hit. “What if I put him in the oven?” What?? Where did that come from? I’m not that kind of parent. I love this child; I would DIE for this child. “What if I put him in the oven?”

And so it began. The endless parade of thoughts that I couldn’t stop, thoughts that horrified me, thoughts that made me feel unclean. Oven, microwave, knives. In my mind I pictured myself hurting my child in a multitude of ways. I stopped watching any show that involved victimization of children, it just added to the list of horrible things I might imagine myself doing to Gates. It made no sense. How could I be holding my child and loving him and at the same time be thinking these things? I begged God to take the thoughts away. I cried and I begged and the thoughts didn’t stop. Had I failed God in some way? Had God turned his back on me? Was I really as evil as I felt?

Having a baby changed everything. If I was evil, I had to work doubly hard to hide it. When people asked how it was going I smiled and proclaimed how great motherhood was. I couldn’t let them see the cracks, the doubts, the uncertainties because they might see though them to the part of me that was evil. I couldn’t tell anyone about the thoughts; they’d declare me unfit and take away my baby. I couldn’t tell my husband, what would he think of me? Would he reject me? I deserved to be rejected, or so I thought.

As Gates grew the thoughts slowly subsided, only manifesting themselves rarely and in other bizarre ways; but the effect remained. No matter how well I parented, I was a failure. I doubted everything about my parenting. Having a baby changed everything.

Fast forward to this year. Major life changes, major stress. I was sinking back into deeper depression and there at the center, waiting to confront me was the part of me that was evil. And I had had enough; I couldn’t continue living with the fear that the shell would crack open and what was inside would lash out and hurt the boys. So I finally gave up. I couldn’t do it all on my own, I couldn’t fix it and I needed help.

At my second counseling appointment I finally spoke the words I had been holding inside for nearly six years. I told of the thoughts that wouldn’t leave me alone. I told of how evil I felt. And then came the words that changed everything. “It sounds like obsessive thought patterns to me.” I came home and started Googling.

Postpartum obsessive compulsive disorder is part of the spectrum of postpartum mood disorders and is estimated to affect 2-3% of new mothers. It is most likely under-reported, however, because of the shame it produces and the fear that our children will be taken away from us. Postpartum OCD is NOT the same thing as postpartum psychosis. Women suffering from postpartum psychosis often cannot see their thoughts as irrational; women suffering from postpartum OCD know that their thoughts are not normal but are unable to get rid of them. Mothers with postpartum OCD rarely act on those thoughts, instead they typically develop any number of rituals in order to avoid them or avoid the possibility of acting on them. (Not always though, in my case I didn’t develop any obvious compulsions.) It can affect women with a previous history of mild OCD as well as women who have never had it before.

More information on what it is: Postpartum OCD

Lots of great resources, support and links about all postpartum mood disorders can be found at Postpartum Progress.

Article from the Washington Post on postpartum OCD.

Those are some of the facts. You can Google all you like and find many more stories out there. The common thread in so many of them is “I wish someone had told me about this before I suffered for so long.”

Do you want to know what grace feels like? Grace is taking your deepest, darkest secret, exposing it to the light of day and having it washed away with just a few words. Grace is finding out that even in those dark moments, when I didn’t understand why he wasn’t taking the thoughts away, God hadn’t turned his back on me.

I don’t know the answer to ‘why me?’ Why did I get this disorder that changed the course of my early parenting years? Maybe I’ll never know. I know that it has taught me that secrets held too long leave their mark. I know that in some ways it did make me a better mother because fear gave me the desire to seek out parenting solutions that were gentle. I know it reaffirms the depths of love that my husband has for me, that when I finally told him he didn’t turn away, he didn’t reject me. I don’t know all the answers, but I know the peace that comes from being finally set free.

Responses

Thank you for sharing your story! I’m so glad you’ve been “set free”!!! You’re not alone and you’re not bad and you’re not evil. Just another of thousands of mothers who have had the exact same experience.

Thank you for sharing your story. I have struggled with PPD twice and mine certainly had a strong OCD component that I never knew until baby number two. In fact, I don’t think I was ever properly treated after my daughter was born, which led to an even worse bout with my son. I actually started writing about my experiences on my blog a few weeks ago. I remember thinking “what if I throw my baby out the window?” What if I drop her down the stair case?” What if I throw her in the fire place?” It was horrid and I thought there had to be a monster deep inside of me. I know now that it was a form of PPD/OCD and have been treated and am finally better, but man it was a long road. I am so thankful that you have finally got the help you needed and that you are sharing with your readers about your experiences. Would it be OK with you if I linked you to my blog roll? Blessings. Angela

You are so right, it IS a long road, and one that I think can only really be understood by those who have travelled it. I’m so glad that you have been treated and are doing better.

Absolutely, feel free to link me to your blog roll. :) I just looked at your blog and am in awe.

I suffered with this after the birth of my first son. I was diagnosed with PPD 6 months after he was born, but didn’t know the obsessive thoughts were a disorder of their own. My thought was always, “What if I just placed him on the floor and stomped on him?” . . . over, and over and over again. It was horrifying.

I’m sorry you’ve had to suffer through this too. More doctors need to understand the differences in post-partum mood disorders, need to ask the right questions to get the right diagnosis.

There is currently legislation in both the House and Senate to increase care, research and public awareness into postpartum mood disorders:

http://www.congress.org/ndmda/issues/alert/?alertid=11246546

Thank you for sharing your story. I am currently getting treatment for my PPOCD. After sharing my thoughts with my psychitraist he diagnosed me with psychosis. I knew what I had wasent psychosis, I never broke with reality. I was terrifed of the thoughts and never once thought I would act on them. He finally changed his diagnosis after I showed him a section of a book that listed the symptoms of PPOCD, which I had all of. There needs to be more research and the public needs to be better educated on the different types of PPD. No woman should suffer in silence like I did.

Thank you for posting. I’m glad you were able to find the answers you needed and to educate your psychiatrist. I pray that you will soon start seeing positive results from your treatment.

In the comment above yours I have posted a link to help support legislation for greater education and awareness around postpartum mood disorders by contacting your representatives as well as current candidates for President.

I was wondering what medicine were you prescribed and how long did it take before the thoughts started going away. I’m three weeks into take risbotol. I’ve been told it takes 5-6 weeks for the meds to take full effect. The thoughts have lessened some days better then others. I know that everyones body chemistry is different and respond to meds differently but I would like to her other womens experiences.

Unfortunately, I was not diagnosed at the time I struggled with it most severely. The thoughts did eventually subside on their own (I would say probably around the one year mark.) What they left in their wake was depression and anxiety, with occasional reoccurances of the OCD-like thoughts over the years. I’m not familiar with the med you are on, I’ve just recently started meds for both the depression and anxiety and 5-6 weeks is the general time frame for pretty much any medication. Be gentle with yourself, give the meds time to work. What will probably happen is one day you will be going about your business and all of a sudden it will occur to you ‘hey, I feel good!’ You won’t know when exactly you turned that corner, but you’ll know that something has changed in your mind.

Praying that you will notice a definite improvement soon.

I just wanted to thank you. I have been struggling for over a year with this and never knew the disorder existed. I literally did think maybe I was going crazy, even though I knew I was not. My thoughts had tapered after a few months but they reoccur every so often and when they do it consumes me. It is only because I had had it with my thoughts and decided to take action in self diagnosing myself online, that i found your blog. I knew it had something to do with postpartum because I was never like this pre baby, all these unnatural obsessive thoughts started occurring weeks after my daughter was born. I wanted to talk to someone about it so badly but like you felt I feared what people would think, or feared them taking my baby from me. I felt like I needed to tell someone to feel better but I also felt like I couldn’t.

After hearing your story I felt such a feeling of relief, relief to know I wasn’t crazy, relief to know I wasn’t alone, relief to know there was an actual diagnosis for this, and relief to know that I could finally accept it was happening to me and know that it would be okay. Just writing this now has already helped me tremendously.

My gratitude will never be able to be expressed properly, but I truly thank you for bringing this out in the open by sharing your own personal story. You will never know how much this story will or has already impacted many new mothers who just don’t know what is happening to them or how to deal with it. You have let us know we are not alone and if we stop hiding from it it can and will get better.

Thank you

I also wanted to add to my above comment because I left out the most important part of my issue, that my thoughts were geared solely at other people hurting my baby, the thoughts were still as obsessive and horrible to me and just as hard to deal with because I would obsess over all the ways people might hurt her, people I knew, friends, family, co workers, literally everyone. The thoughts became so bad that I was constantly suspicious of everyone. It’s been a year and occasionally I still have these thoughts. I feel that this also applies to PPOCD, because the thoughts were so constant and I always felt horrible for thinking them, to the point I didn’t want to talk about it because, like I said before, fear of what people might think.

I just wanted to get it out there in case anyone else reads this and has had crazy thoughts that weren’t geared toward them physically hurting their baby but more of others hurting their baby, the disorder is related to both cases, and can be just as hard to deal with, and I am finding since reading this that it is better to talk it out than to hold it in.

Thanks again for your story!

I am so thankful to know that my story has helped you find relief. And you make an important point, PPOCD does not always involve thinking you will hurt your baby, it could be thoughts of others hurting your baby, or excessive thoughts that you might accidentally do something to harm your baby.

I have been suffering from PPOCD since the birth of my son almost three years ago, with some relief during my second pregnancy, only to come back ferociously four months after my daughter’s birth. I live in a rural area with no support groups, I have a wonderful psychiatrist who seems clueless about post-partum disorders and refuses to diagnose or ‘label’ me in any way, which has made my journey through this living hell worse. My obssessive thoughts have spilled over to everyone I love in my life, my husband, my family, my kids, the family dog and even my favorite chicken. It feels like I am being taken over. I was put on Lexapro after my first panic attack, and my shrink agreed that I was doing better and could wean off of it. Boy were we stupid! Panic attack in a car going 65 mph anyone? After reading this blog and the comments I am heartened to know that I am not alone, not crazy, not evil. I accept this label as it helps me define the horror I am undergoing, and it will help me know that recovery and help is at hand. I will also enlighten my shrink. Thank you all for your honesty and openness. It has made a tremendous difference for me.

Huge hugs to you. And you are right, you are not alone, not crazy, not evil. Hopefully this has been the doorway to lead you to some really good information to help enlighten your shrink.

Thank you for your blog graceunbound. I have been going through ppocd since my daughter turned1. She is now 2 1/2 and I still am working with my dr to find the right med. I have been on soloft, lexapro,effexor,cymbalta and am now trying pamelor. The problem is that the meds work for a few months and then just like that they just stop working. It is so frightening and consuming to think you want to hurt your baby. The one you love more than life yet when you look at her you think what a bad mother you are and that you should be thinking how much you love her but cant get the thought of strangling her or stabbing her out of your head. What a horrible disorder. I was diagnosed with Psychosis when I first told my family doctor and they put me in a hospital for a week. Luckily in Delaware where I live there is a WONDERFUL postpartum support group where I got the real scoop and the support I needed. These thoughts have caused terrible anxiety and depression for me and I will never have another child. I pray every day that It just goes away. God bless all you women who went through or are now going through what I am experiencing.

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